This text is translated into Russian by google automatic human level neural machine.
EastRussia is not responsible for any mistakes in the translated text. Sorry for the inconvinience.
Please refer to the text in Russian as a source.

28 million rubles were raised for a child with SMA from Ulan-Ude

28 million rubles were raised for a child with SMA from Ulan-Ude
Photo: personal archive of the Garmaev family

For Adisa Garmaeva from Ulan-Ude, who suffers from spinal muscular atrophy, they raised 28 million rubles. To save a two-month-old girl, another 132 million rubles are needed.

As the "Baikal Daily", Adis was discharged from the hospital, where he received a second injection of the health-promoting drug Spinraza. The money is collected for the drug "Zolgensma", "Spinraza" was purchased at the expense of the budget in the Ministry of Health of Buryatia. One package costs 6,2 million rubles. But Spinraza does not cure SMA, it only stops the disease. You need to introduce this drug very often in the first year, and then all your life - six times a year. An injection from Zolgensma can cure the child.

Adisa is the first and long-awaited child of Arsalan and Darima Garmaevs from Kyakhta. She suffers from a rare genetic disease, type XNUMX spinal muscular atrophy (SMA). This disease progresses very quickly. This disease destroys the body - muscle fibers gradually stop working. Half of children with this diagnosis do not live to be two years old.

Only one injection worth 160 million rubles can save Adisa from Ulan-Ude. You can collect this amount if every resident of Russia over 15 years old transfers to her account only one and a half rubles.

Adisa's parents said that there is another way to help the girl financially. Many have connected “thank you” bonuses from Sberbank. If there is a level "More than thanks", then you can exchange them for money and donate to Adisa.

Mob. Bank: 89503863174
Sberbank card number: 2202201346432905 Darima Andreevna G.
Account in the Savings Bank of Adisa: 40817810709167640548 Adisa Arsalanovna G
Sberbank Pope Adisa 4173 9800 2831 5014
Mob.b 89516399101 Arsalan Yurievich G

Sberbank: Adisa's grandfather
8 (902) 532-46-96
Andrey Anatolyevich V

VTB: 4893470460105726
Mob. VTB Bank: 89503863174 Darima Andreevna G
Gazprombank: 4249170443427962 Darima Andreevna G
Currency account: 40817840109162100705 Darima Andreevna G
PayPal: Darima Garmaeva


April 10: current information on coronavirus in the Far East
Digest of regional events and latest statistics