Irkutsk
Ulan-Ude

Blagoveshchensk
Chita
Yakutsk

Birobidzhan
Vladivostok
Khabarovsk

Magadan
Yuzhno-Sakhalinsk

Anadyr
Petropavlovsk-
Kamchatsky
Moscow

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A girl with SMA from Buryatia will receive the most expensive injection in the world

A girl with SMA from Buryatia will receive the most expensive injection in the world
Photo: tsydenov_aleksey

For four-month-old Adisa Garmaeva, in just over two months, they raised the necessary amount for the treatment of spinal muscular atrophy. The parents have already gone with the girl to Moscow.

Parents publish information about the collection on the page in Instagram... Doctors confirmed at Adisa spinal muscular atrophy of the first type... This is a rare genetic pathology, during which first a person stops moving, then swallows, and then breathes, while the disease does not affect the intellect at the same time. Without treatment, children often do not live to be two years old.

However, there is a medicine in the world that can restore damaged genes. An injection of Zolgensma can cure children, but the cost of one injection is too high for parents. One dose is worth about 160 million rubles.



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