This text is translated into Russian by google automatic human level neural machine.
EastRussia is not responsible for any mistakes in the translated text. Sorry for the inconvinience.
Please refer to the text in Russian as a source.
A girl with SMA from Buryatia will receive the most expensive injection in the world
For four-month-old Adisa Garmaeva, in just over two months, they raised the necessary amount for the treatment of spinal muscular atrophy. The parents have already gone with the girl to Moscow.
Parents publish information about the collection on the page in Instagram... Doctors confirmed at Adisa spinal muscular atrophy of the first type... This is a rare genetic pathology, during which first a person stops moving, then swallows, and then breathes, while the disease does not affect the intellect at the same time. Without treatment, children often do not live to be two years old.
However, there is a medicine in the world that can restore damaged genes. An injection of Zolgensma can cure children, but the cost of one injection is too high for parents. One dose is worth about 160 million rubles.